1 year post HSCT

TODAY January 9th is one year since HSCT, 1 year since my immune system was re-born. A birthday of sorts.

I am still on the road to recovery. A road with lots of potholes. My recovery has been slow needless to say, but I want to keep a record of how things change, if they change.

Tabulated below is what I can remember in terms of symptoms. The changes are definitely a reflection of physical therapy and yoga, but it is largely a reflection of TIME. I am hoping that I will have more green cells in the next few months and years.

Another important measure is EDSS.

Pre-HSCT my EDSS score was 4.5, and now my EDSS score is 6.0-6.5.

So yes, this has gotten worse quickly 😦 , But since hope is all I have now, The Hope is that it will get better.