Define Remission

Disclaimer: This is a definition for me, for my kind of MS. Google still has the most accurate meaning.

I am in remission for almost a year now. What that means for me is that MS has taken a break and I have no NEW lesions on my brain/spinal cord when compared with the MRIs from July 2018. This was the news I got during my 6 months follow-up with Dr. Burt.

What remission does not mean for me unfortunately is that I am cured or that I can now run a 5K everyday. But this is still great news because the fact that the disease seems to have stopped opens up a path to recovery. A path to life as close to a cure as I can get.

I am looking at logical next steps for remyelination. It is still in the mice stage of a medicine’s lifetime, but I am hoping something will succeed in my lifetime.

I am happy to state that I seem to be back physically to my pre-HSCT baseline. What that means is that I probably still need a cane, I have limitations to how far I can walk. But, I’ve never met another person as happy as I am to be going backwards 😀 😀